Tuesday 25 June 2019
I’d had pretty patchy sleep and was tired in the morning. My stomach also felt a bit uncomfortable.
However, I was due to be staying on the chemo ward for the next three days, so I got up and called the hospital at 8:30 to see what time they wanted me to come in. Unfortunately, they had no beds available and said that they would have to give me a call back later to let me know what to do. I spoke to them again around lunchtime and it sounded pretty bleak. They didn’t think they would have a bed available for me in time to make a start. I did feel a bit put out, but I could understand that there are only so many beds and scheduling patients is not an easy task when it’s not known exactly how long some of them will end up having to stay in for.
They gave me another call just before 14:00 and said that they would have a bed later in the evening, so if I could get in as soon as possible, they would get me started on my chemo in another room and then I could move to the bed as soon as it was ready. That was good news and cheered me up.
Pia got me to the hospital just before 16:00 and I was taken to the TYA (Teenage and Young Adult’s) lounge, where I was given my premeds and then hooked up to an IV pump to get treatment started.
Pia and I were the only people in the TYA lounge. There was a kitchen, pool table, table football, a juke box and loads of games and guitars and things. We got some music going and played a round of pool and scrabble.
When my bed was ready, it turned out that I was being put in one of the private rooms in the TYA end of the ward. That was quite nice! More spacious, with a sofa, desk, private bathroom and even a Banksy print on the wall. It was also quite a bit cooler than the four person room I stayed in previously. The sofa is such that it can be used as a single guest bed, as I’m sure a parent often ends up staying overnight when they have a teenager receiving inpatient treatment. I was told that I might be shifted out of the room if they needed it for someone else, but I managed to hold onto it for the duration of my stay.
My treatment protocol was exactly the same as for cycle 1 and took me through until just after midnight. Pia stayed until around 20:00 before driving home. After she left, I tried to get a bit of this blog written, as I was almost three weeks behind! I managed to get a bit done which was a good start, but I was also getting tired and hoped for a good night’s sleep.